Well, it has certainly been a while since I wrote on this blog. I haven’t forgotten about it – or you – my loyal reader audience – it has just been a difficult month and I have not felt much like writing. Alas, my muse left me for a while!
Things I have been battling with in the last month have been down to trying to get my mental health care sorted from the NHS down here on the south coast.
Each week I have been told something different by someone else – it seems I don’t need to see a psychiatrist about my medication when it has been over 12 months since it was last reviewed. This turns out to be something I alter myself or visit my GP for. This has been a big disappointment for me. When we had the first assessment – when TuT was present – the nurse conducting the assessment said, in front of TuT and to me, that a psychiatry appointment would be made. This has not happened.
The day hospital that the nurse was so positive about turned out to be another disappointment. After another gruelling assessment at the said day hospital, I was told that it ran groups, the groups are broken down into activity, support, and educational. I was not given a timetable and asked which groups I would like to attend or what I felt would be beneficial, I was told that they would have a meeting and decide which group would be suitable for me.
Nothing was heard from this assessment for over two weeks, until I got a phone call, saying that I was going to be put down for attending “The Holistic Group”; I am as much in the dark as you are reading this, as to what the said holistic group is and what it does.
This is a mystery that will remain unsolved for some time; the groups run in blocks and you can’t join a group that has already started. My window for joining the holistic group is not for another two months!
So I had all this going on with my medication, lack of psychiatry support and finding out the day hospital could do nothing for me for months. I am experiencing an increasing sense of loneliness and isolation with TuT out the door before 8am and not home until well after 6pm in the evening. It’s a long day with no friends or family.
In light of this, my CPN recommended that I get in touch with the local “Mind” centre. The mental health charity “mind” run a centre about 25minute walk from the flat that you can “drop-in” to. They cook a lunch and one night a week an evening meal, and you can get involved in helping to prepare that meal, or just have some company with people that may be in a similar situation to yourself. Just drop in for a cup of tea and a chat; whatever you feel like doing – there is no pressure, you can attend as often or as infrequently as you like.
I had made a few attendances at the mind centres in the north, so I went along for a look, then returned a week later for an interview. As it is an informal drop-in I didn’t think the interview would be too troublesome. It turned out to be another gruelling assessment of my life and experiences and mental health and medication that lasted over an hour and a half. I came out in floods of tears, and was told that I would have to wait for references from my GP and Community Psychiatric Nurse (CPN) to come back to the centre before I could start attending.
This was another blow as by now I was frustrated that the day hospital had come to nothing and was becoming increasingly unhappy with my long empty days that I just wanted some company and social interaction to fill. I was falling into dangerous waters of spending my time watching rubbish on the tv, not getting showered or dressed until late in the afternoon, and not making any effort to go out and do anything because I was just so depressed. At one point I said to TuT
“I can’t remember the last time I laughed”
It was not a good time. I met with my CPN last Thursday and she told me to chase the mind centre because they had faxed off my reference to them.
This week I rang the mind centre on Monday and went along to see them late on Tuesday afternoon. After a chat it was agreed I can start attending the mind centre and will also be having scheduled “one-to-one” time with a member of their staff to work on confidence and just feeling better in myself.
It’s been a long slog to get to this stage, but having the support of the mind centre, and actually having somewhere to go, to be with some company, is just what is needed for me right now.
So things are looking up and I am more inclined to write about my experiences now – so keep checking the blog – THE TOAD IS BACK!! GWUAR!!